Children, young people and families

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NES Learning Disabilities team will continue to review and update this page as required.

Please note for information

Some of the below links and resources will direct you to information sources that are external to NES. These have not been created by NES and have been included for your information only. The inclusion of these sources is not as a recommendation or an endorsement of the associated content.

Reducing avoidable deaths in children and young people with Learning Disabilities

NES LD team recognise the specific issues children with Learning Disabilities, their families, and carers face. We hope the information on this page supports learning in these areas and additional resources for children and young people’s workforce are highlighted below.

This short film is aimed at health and social care workers and educators, carers, and families of children and young people with learning disabilities. This was produced by Scottish Learning Disabilities Observatory. The film shares evidence about the avoidable deaths of children and young people with learning disabilities and highlights key areas where awareness and action are needed

Here below is a link to the SLDO report into avoidable deaths in children and young people with Learning Disabilities.

Supporting disabled children, young people and their families - Scottish Government guidance

You can view the Scottish Government guidance on supporting disabled children, young people and their families below.

Learning Module

These modules were developed in collaboration with families of children with exceptional healthcare needs. Much of the learning contained in these modules is highly relevant for practitioners working with children with learning disabilities and their families. 

Knowledge and Skills Frameworks

Specific competencies for those working with children with learning disabilities and their families and carers are included in the following frameworks, developed by NES. 

This links to the CAMHS competency framework, which includes specific competencies for staff working with children and young people with learning disabilities. 

This links to the knowledge and skills framework for children and young people’s mental health and wellbeing.  This includes some specific competencies for staff working with children and young people with learning disabilities. 

Useful videos

This links to a short video developed by the NHS Lothian CAMHS intellectual disability team explaining how to use a visual timetable.

In this link to a short video developed by Education Scotland, Dr Helen Downie, talks about why it's important to understand children and young people’s behaviour.

Links

Here are some links to some helpful organisations for parents and families of children and young people with learning disabilities: