Once for Scotland : Learning Disabilities

Website: Foundation for Angelman Syndrome Therapeutics (FAST) UK 

Published articles:

• Incidence of fractures in people with intellectual disabilities over the life course: a retrospective matched cohort study

• Evidence- Peripheral bone density measurement: An interdisciplinary initiative for improving health outcomes for people with learning disabilities

Published articles:

• Research priorities to improve cancer care for people with intellectual disabilities across the cancer continuum
• Identifying the deficits in cancer care for people with intellectual disabilities
• Population-based cancer incidence and mortality rates and ratios among adults with intellectual disabilities in Scotland: a retrospective cohort study with record linkage

NES Resources

• SKIN Resources - Cerebral palsy is the commonest cause of physical disability in childhood and contributes to many risk factors for pressure ulcer development. Through this project a SKIN bundle was introduced and the project's aim was to ensure that all at risk children had a skin assessment. The project also aimed to provide appropriate education to carers.

External Resources

• Cerebral Palsy Scotland- Information and Resources 

NES Resources

• NHS Education for Scotland Module- Constipation awareness in people who have learning disabilities

External Resources

• British Journal of General Practice- Constipation in autistic people and people with learning disabilities (Link)

NES Resources

• NES Module-  Learning Disability and Dementia with Dr Karen Watchman
• NES Module-  Understanding dementia in people who have learning disabilities
• NES Module- Living well with dementia and a learning disability
• NES Mini-Site- Once for NES: Dementia page - This gives insight into living with dementia and has some information about living with dementia and a learning disability. It links to NES Dementia Training.

External Resources

• Diabetes UK  Improving the care of people with diabetes and a learning disability (Link)
• International Consensus Guideline Reasonable Adjustments in the Management of Type 2 Diabetes in Adults with Intellectual & Developmental Disabilities (Link)

External Resources

• NHS Inform- Down's Syndrome - Link to web page
• Down's Syndrome Scotland- About Down's Syndrome - Link to web page

• Annual Health Checks | Down's Syndrome Scotland

   

External Resources

• NHS Inform- Gastro-oesophageal reflux disease (GORD) (Link to web page)
• British Society of Gastroenterology Guidelines on the management of functional dyspepsia (Link to web page)
• NICE Guidelines- Gastro-oesophageal reflux disease in children and young people: diagnosis and management (Link to web page)
• NICE Guidelines Gastro-oesophageal reflux disease and dyspepsia in adults: investigation and management (Link to web page)

External Resources

• NHS Inform- Dysphagia Not specific to people who have learning disabilities (Link)
• Royal College of Speech and Language Therapists- Supporting people with eating, drinking and swallowing difficulties - Not specific to people who have learning disabilities

External Resources

• Epilepsy information for people with learning disabilities: easy read (Link)
• Diagnosis and management of epilepsy in adults (Link)

NES Resources

NHS Education for Scotland- Fetal Alcohol Spectrum Disorder (FASD) learning site for Scotland's health and social care workforce

External Resources

• Fetal Alcohol Advisory, Support and Training Team Addressing fetal alcohol spectrum disorders in Scotland (Link)

External Resources

• Fragile X Society- Fragile X  (Link)

• MENCAP UK - Fragile X (Link)

   

External Resources

• Scottish Commission for Learning Disabilities- Healthy Eating Healthy Living Pack (Link)

NES Resources

• NHS Education for Scotland - Your Posture Matters | Turas | Learn
• NHS Education for Scotland Getting postural care right using the Pamis Digital Passport - webinar (Link to video)

External Resources

• Prader-Willi Syndrome UK- Information and Resources (Link)
• International Praeder-Willi Syndrome Organisation- Information and Resources (Link)
• The MAYO clinic- Prader-Willi Syndrome  (Link)
• The genetic and rare diseases information centre- Prader-Willi Syndrome  (Link)

External Resources

• Public Health Scotland- CHANGE resources are a range of easy read materials for parents who have learning disabilities:

  Ready steady baby! (Link)

External Resources

• NHS Scotland- Children with exceptional needs managed clinical network (CEN)
• Promoting A More Inclusive Society (PAMIS) Information and Resources (Link)

External Resources

• Bradford District Care- Keeping my chest healthy (Link)
• Scottish Commission for Learning Disabilities- Respiratory Mortality (Link)

External Resources

• Tuberous Sclerosis Association- Information and Resources (Link)

External Resources

• External Resources
• Williams Syndrome Foundation- Information and Resources (Link)
• NICE guidelines- William's Syndrome (Link)