Down’s Syndrome Scotland (DSS): Supporting Midwifery and Neonatal colleagues to support families with a diagnosis of Down’s Syndrome during pregnancy or at birth

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Webinar resources from the Down’s Syndrome Scotland (DSS) - Supporting Midwifery and Neonatal colleagues to support families with a diagnosis of Down’s Syndrome during pregnancy or at birth WCYPF Webinar, which was hosted on Wednesday 24th January 2024.  These resources will be available until Thursday 31st October 2024.

Webinar Details

The Women, Children, Young People and Families (WYCPF) team at NHS Education for Scotland (NES) were delighted to host a webinar on Down's Syndrome offering an opportunity for CPD and collaborative learning.  Join us to hear about the issues affecting families and babies with Down's Syndrome and the support available.

The webinar aimed to:

  • Increase knowledge about Down’s Syndrome and associated health issues, characteristics and learning profile of someone with Down’s Syndrome
  • Increase knowledge of caring for infant at birth and in the immediate neonatal period
  • Increase knowledge and understanding around supporting families with an unexpected diagnosis during pregnancy and in the postnatal period
  • Improve awareness of the information, services and support Down’s Syndrome Scotland offer to families
  • Provide a greater insight of Down’s Syndrome from a parent of a child with Down’s Syndrome and lived experience of a young person with Down’s Syndrome

Presenters:

  • Varshali Swadi – Professional Engagement Lead, DSS  
  • Parent Volunteer Speaker

Target Audience:

Practitioners who provide support and care during pregnancy and the postnatal period.

Resources

Presentation Slides and Video

PDF copy of the PowerPoint presentation, which was shown at the webinar. Please click on download to view.

Words Matter

Video shared during webinar.

Additional Resources

Down's Syndrome Scotland Website

Please find links to some resources which were mentioned during the webinar from Down's Syndrome Scotland.

Parents of Children | Downs Syndrome Scotland (dsscotland.org.uk)

Information for Expectant Parents | Downs Syndrome Scotland (dsscotland.org.uk)

New Parents | Downs Syndrome Scotland (dsscotland.org.uk)

Preferred Language Guide | Downs Syndrome Scotland (dsscotland.org.uk)

Breastfeeding

Babies with down’s syndrome may have issues with latching due to low oral-motor muscle tone, however this does not mean they can’t breast feed.  There are lots of resources and ideas like supplement feeding, massaging the mouth area to stimulate feeding, ideas if the baby is Ng fed.